What percentage of policy-making boards in independent living programs must consist of persons with disabilities?

In independent living programs, the requirement that 51% of policy-making board members be individuals with disabilities reflects a commitment to inclusivity and self-determination. This percentage ensures that the voices and experiences of people with disabilities are not just represented but are dominant in the decision-making process. By having a majority of board members with lived experience, these programs can better align their policies and services with the actual needs and desires of the community they serve, fostering true empowerment.

This requirement is rooted in the philosophy of independent living, which emphasizes the importance of having individuals directly impacted by disability take part in decisions affecting their lives. It fortifies the principle that those who experience disability should not only have a say but hold the majority stake in guiding the direction and priorities of the program to advocate effectively for independence and full community participation.

Other percentages, such as 25%, 75%, and 100%, do not fulfill the necessary representation principle established to ensure that people with disabilities lead and shape the policies that affect their lives, communities, and the services they utilize. Hence, 51% is the critical threshold to maintain genuine representation and advocacy in independent living programs.